Watch here: "Advocacy in Rare Disease: Surveying the Landscape" produced by @ScienceWebinars sponsored by @FondationIpsen.
The webinar features Pyxis Partners CEO Michael Manganiello and an expert panel who examine the advocacy landscape, asking what does advocacy entail, who are advocates, what organizations are involved with rare disease advocacy, what determines how umbrella organizations allocate resources, and what is effective—examining success stories of when advocacy has worked.